Living · MS Life

Being a Prisoner to Chronic Illness

A brilliant post by Rhiann from My Brain Lesion and Me about the isolation and loneliness of chronic illness.  I completely understand how she feels, though it makes me feel very lucky indeed that I can still manage to get out of the house, perhaps not so easily or regularly or to do the things the… Continue reading Being a Prisoner to Chronic Illness

Living

My MS Story

One of my first posts! Explaining about my MS diagnosis almost 23 years ago and how it has progressed.

Tripping Through Treacle

So, I was a normal 13 year old girl, attending school, making new friends following an across the sea move from Canada and basically just getting on with being a teenager.

When I couldn’t see the basketball hoop at school, I had no idea that this was the start of something really scary, life changing in fact.  I just thought that I needed glasses – what other reason would there be for the hoop to look fuzzy?  I must have mentioned this to my parents – cue LOADS of different tests, including one where I was able to miss school (yes!) and have electrode type things put all over my head whilst, I am guessing, the doctors looked to see what my brain was doing.  I still remember sitting in the car on my way home from that appointment, picking away at the glue like stuff stuck in my hair…

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Healthy Living with MS · OMS

Reflections on OMS

Brilliant post by She Dances With Spoons – all about the Overcoming Multiple Sclerosis lifestyle ✨🌱💪

She Dances with Spoons

The universe has a benevolence that wantsus to live

As I sat there, a single face among a group of 37 other MS warriors, I became transfixed by the sentence. Here I was listening to the harrowing, sometimes gut wrenching but ultimately hope-filledstory of our facilitator’s life that brought her to that very point in time, and that single sentence decided to glue itself to my heart – Tarzan grip style.

In that moment I felt hope.

I greeted hope for what she was; the ship that had carried me this far without me acknowledging it until that point, thinking I was really being moved along by sheer grit.

Hope is the single most powerful and intangible gift I took away with me from the Gawler Foundation’s Overcoming Multiple Sclerosis retreat in the Yarra Valley.

oms

The tools , knowledge and awareness I had consumed throughout the week had equipped…

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