Even though I have been at work this week, I am still suffering from monumental jet-lag - when my alarm went off at 6:30am if felt like I was being rudely awaken by someone shouting in my ear in the middle of the night. Cue lots of coffee to get me though the day and… Continue reading Who am I?
Some of my regular readers will know that I have recently been on a two week holiday to Florida with my family - my two kids, my husband and my parents. It was a long awaited trip (the kids have been asking every week, 'how many days is it until Disney?', for the past year),… Continue reading 5 Things I learned from my trip to Florida, as a person with a chronic illness
Things have taken a turn for the worse. I thought that I might have been having a bit of a 'blip', having a bad patch, so to speak. But this is the new me. The new me that lives under a cloud of stress and worry. After 19 years of being pretty much symptom-free, my… Continue reading Cloudy Days and Rainbows
A brilliant post by Rhiann from My Brain Lesion and Me about the isolation and loneliness of chronic illness. I completely understand how she feels, though it makes me feel very lucky indeed that I can still manage to get out of the house, perhaps not so easily or regularly or to do the things the… Continue reading Being a Prisoner to Chronic Illness
March heralds MS Awareness month. But what does this actually mean? In my life, I've found that most people are 'aware' of MS; they have a 2nd cousin twice removed who has it, or, as my husband used to think, 'it is something that affects your mobility... so you end up in a wheelchair'. Heck, I used… Continue reading March: MS Awareness Month
My life has changed immeasurably over the past 10 years. This time in 2007, I was relatively newly married, working full time and just enjoying my evenings and weekends with hubby with no cares in the world. Fast-forward to 2017 and instead of being a happy-go-lucky newly wed, I am a 30-something disabled wife and mother,… Continue reading Then:Now
The last few weeks have been hard... getting back to work after having a month off, starting new meds, kids constantly scrapping.... it has been enough to make me want to crawl into bed and hibernate until the sun comes back out. My month off work was interesting. The first half was taken as annual… Continue reading Decisions, decisions…
So, I have just returned from my summer holiday - which I was really looking forward to (10 days off work, yippee!), but also viewing with trepidation and worry about how I was going to manage as a person with a chronic illness (see this post). We decided to take the kids 'glamping' this year. They… Continue reading Taking Chronic Illness on Holiday
...... and I feel completely worried and apprehensive about it. A week 'glamping', save for the first night in a hotel in York. The kids have been so excited. They wrote their lists of things to take - marshmallows for s'mores, head torches for the forest - and even helped with the packing. (I've had… Continue reading We’re all going on a summer holiday…..
Making Adjustments to Try and Make Things Easier Today is the first day of my new working week. I work 3 days a week as a speech and language therapist, helping kiddies with complex speech and language disorders. Until last week, I grouped my working days together - Tuesday, Wednesday, Thursday - with the idea… Continue reading Making it work